Friday, March 29, 2019

Taking the Long View


This past Wednesday, March 27, was a rousing celebration of Project Action!’s 30th anniversary (https://www.dcqualitytrust.org/families/join-project-action/) and Developmental Disabilities Awareness Month (https://www.eventbrite.com/e/celebrating-30-years-of-self-advocacy-tickets-57407281725).  Representatives from Mayor Bowser’s administration and from Councilmember Brianne Nadeau’s office joined a crowd of pumped-up disability advocates at the Department on Disability Services to celebrate and to remind ourselves how necessary it is to take the long view – a helpful perspective this week when the decision to defund, then refund, Special Olympics has been so much in the news: https://www.usatoday.com/story/news/politics/2019/03/28/president-trump-restoring-funding-special-olympics/3302983002/.

This backdrop made the Special Olympics video we viewed (https://www.jointherevolution.org/50-game-changers/ricardo-thornton) that much more compelling.  The Thorntons have so much to teach all of us, but this time around it wasn’t just Donna and Ricardo doing the teaching, but also Ricardo’s late sister Earline, who died while the three were still at Forest Haven and was buried on the grounds o that institution in Laurel, Maryland.  On Wednesday DDS director Andy Reese announced that DDS will name a conference room in her honor as an ongoing legacy.  My imperfect picture captures that announcement:



Many representatives of Project Action! were at the event, where the organization handed out tokens of appreciation to a number of their ongoing supporters.  There were many touching tributes, but I especially liked this statement by Alison Whyte, the executive director of the D.C. Developmental Disabilities Council (I may be biased as the new chair!): https://drive.google.com/file/d/1ZMJn1TX0M9Bk90WGGiaaA3fBSa0wiIde/view?usp=sharing

As our community faces upcoming challenges (budget, housing…more to come on those) it’s great, and healthy, to stop and celebrate.




Carol Grigsby dedicates herself to information sharing and advocacy on issues affecting her own son and other citizens with developmental disabilities in Washington, D.C.  She is currently chair of D.C.'s State Council on Developmental Disabilities, as well as serving on the board of the Quality Trust for Individuals with Disabilities and on the Family Support Council of D.C.'s Department on Disability Services.  She retired from the federal government’s senior executive service in 2011 and has lived in D.C. since 1978.  The views in https://www.DDinWDC.com are her own.

Monday, March 18, 2019

Housing Events and More during Developmental Disabilities Month


The next two weeks provide opportunities to celebrate as well as opportunities to advocate.  Do both!

Wednesday evenings this week and next present important opportunities to celebrate Developmental Disabilities Awareness Month (https://nacdd.org/ddam).  From the event website at https://www.eventbrite.com/e/celebrating-30-years-of-self-advocacy-tickets-57407281725:

March 20: Loving -- Heartbreak, Happily Ever-Afters, and Everything In-between; 6 – 8 pm @True Reformer Bldg/Lankford Aud., 1200 U St., NW
A lively discussion is sure to happen as panelists with disabilities share their experiences about building and maintaining healthy, intimate relationships. Clips of Profoundly Normal will be shown to spark conversation. Based on the life of Ricardo and Donna Thornton, this made-for-television movie tells the story of their journey from Forest Haven, the District's former institution for people with developmental disabilities, to husband and wife, to parenthood. Hosted by DDS and the Developmental Disabilities Council (DDC) this event is free and open to the public. For more information, contact Emily.Price@dc.gov.

March 27: Celebrating 30 Years of Self-Advocacy
4 – 7 pm @ the Department on Disability Services, 250 E St., SW

This event highlights the work and honors the members of Project ACTION! for their commitment and dedication to disability rights. Project ACTION! is a coalition of self-advocates and advocacy organizations throughout the DC metropolitan region. It started in 1989 when a small group of people with developmental disabilities began meeting monthly at the Lt. Joseph P. Kennedy Institute to discuss issues impacting their lives and goals they wished to achieve. It is now an independent 501 (c) 3, supporting people with disabilities to become national self-advocates with members serving on various disability organization boards and committees. For more information, contact Mark.Agosto@dc.gov.

But in between those two celebratory events, take in one of these important follow-up sessions on the proposed DDS housing policies that I’ve covered in several recent blog posts (https://DDinWDC.blogspot.com, search “housing”):

Monday, March 25: HCBS (D.C. Medicaid waiver) meeting
2-4 pm @ the Department on Disability Services, 250 E St, SW
(with pre-meeting for self-advocates from 1-2 pm) OR

Wednesday, March 27: Special Session on Housing Policies
1-3 pm, Ora Glover Meeting Room #3
1800 Good Hope Road, S.E.

Make sure you come to at least one of these because these policies are going to affect greatly people with disabilities who receive residential supports in D.C.  DDS has hosted a number of “listening sessions,” at Family Support Council (https://dds.dc.gov/event/public-meeting-family-support-council-3282019), Supporting Families (https://dds.dc.gov/page/dc-supporting-families-community-practice), Project Action! (https://www.dcqualitytrust.org/families/join-project-action) and other meetings.  Now I hope we’ll be getting answers from DDS to the many questions advocates have raised in earlier sessions.

Finally, what a great time we had at Quality Trust’s Better Together reception last week!  Thanks to Phyllis Holton for arranging such a great gathering, and thanks to everyone who came out and supported this essential organization.  We’ll see you at the summer gala!




And stay tuned for Autism Awareness/Acceptance Month (https://autisticadvocacy.org/projects/community/autism-acceptance-month) in April!

Tuesday, March 5, 2019

Two ways to invest in the future



Before I dive in, I’d like to extend personal thanks to Winslow Woodland and Erin Leveton.  You both know why.

And now down to business.  By now, I’m assuming you’ve sent in your testimony to the Human Services Committee (humanservices@dccouncil.us) with respect to DDS performance – whatever you have to say, positive or negative or somewhere in between – or if you’d like to put in a plug for expanding services beyond intellectual disabilities – NOW’S THE TIME, BY MARCH 7.  It can affect the DDS budget for next year.  Feel free to read my last blog post if you’d like some ideas!

But there are two other immediate ways for you to invest in the future of people you know and support in D.C.

     On Friday, March 8, from 9:30 to 3:00, you can attend all or part of the Supporting Families Community of Practice meeting at DDS (250 E St SW, Federal Center SW metro), which this time around will offer opportunities to learn more about Supported Decision Making (and how to make it real in your life.  Contact Emily Price (emily.price@dc.gov) for more information.  The Family Support Council will also be taking up SDM in a more detailed way at its upcoming meeting later in March, and Emily can tell you more about that too if you’re interested.


·        And on Tuesday, March 12, 4:30 to 7:00 kick back and have some fun at the Quality Trust Better Together Reception at Umaya Izakaya Restaurant, 733 10th Street, NW.  Buy tickets at https://qualitytrustforindividualswithdisabilities.networkforgood.com/events/10906-better-together-reception.  Yes, I’m on the QT board, but that’s because it plays a crucial role in providing ongoing monitoring, oversight and advocacy for people receiving services and supports from DDS.   QT often operates behind the scenes but it’s more important than you may realize.  So turn out on Tuesday night to give QT and the folks you care about your support, and have fun doing it.  I’ll be there, with my son – see you there!





I haven’t heard anything more about when DDS will host a special meeting or meetings on the draft housing and contribution to care policies that I’ve discussed in recent blog posts, but at the performance hearing on February 21 Andy Reese said that the new complaint system called for in the DSRAA (take a look at the page over to the right “Acronyms and Organizations” if you don’t know what this is) would be in place before these new policies are implemented, so that’s a good sign.  Watch this space for more news about an upcoming meeting on these policies (DDS feel free to post a comment!), and in the meantime, search “Housing” in the block to the right to read my recent blog posts about these policies.

Friday, February 22, 2019

Smooth Sailing?



There was a good turnout by advocacy groups, providers and a few self-advocates at the performance review hearing on the Office of Disability Rights (ODR) and the Department on Disability Services (DDS) in the council’s committee on human services yesterday. The archived hearing can be found at http://tinyurl.com/y28h79f7.
The first 50 minutes or so of the video contain testimony by, and questions for, Mat McCollough, ODR director (http://tinyurl.com/yxgeyqeq) and the balance of the video is about DDS.  (You’ll understand the rest of this post better if you take a look, over to the right, at my updated page of acronyms and organizations you should know  – maybe you’ll want to print that out.) 

Provider agencies (starting at 0:50:00) who spoke expressed particular concern about:  1) the fact that D.C. rents are far outstripping the DDS rent caps ($1599 for 1BR and $1894 for 2BR apartment), with the result that people receiving residential supports are often moving to unfamiliar or even unsafe neighborhoods or over the line into Maryland;  2) the difficulty of attracting and retaining DSPs (given that the rising D.C. minimum wage is offering employment alternatives at the same rate of pay with fewer responsibilities and challenges); and 3) problems with lapses in services due to flaws in the Medicaid recertification process.  Later, Jimi Lethbridge from Quality Trust (about 2:15:00 on the video) and Tawara Goode and others from the Georgetown UCEDD (starting around 2:30:00) talked about the fact that D.C.’s I/DD waiver continues to be limited to those with an intellectual disability, and Sandy Bernstein of DRDC/ULS (around 2:05:00) spoke at length about the fact that, even within current eligibility guidelines, DDS’s intake office is creating many obstacles to admission for waiver services.  Both Sandy and Jimi talked about significant delays in getting services started and getting timely action in situations of real urgency, and concerns also were raised with respect to the delay in getting the complaint mechanism called for in the DSRAA legislation established, and delays, inconsistencies and service lapses in RSA.  And yes, I had my say (around 2:10:00) about housing policies now under consideration and supported decision making at the operational level in DDA.

After the four panels of witnesses, Andy Reese, DDS director, testified (at minute 2:50:00 and here: https://tinyurl.com/y242b22a), followed by Q and A.  What I found a little discouraging was:  1) the fact that of all the committee members, only the chair, councilmember Brianne Nadeau, showed up (although Grosso had staff there throughout); and 2) the fact that witnesses were asked few follow-up questions and that, while Andy made a good case for DDS accomplishments over the past year, for the most part his answers during the Q and A were taken at face value with little or no follow up.  (If you watch nothing else, you should see how you feel about his answers to the questions posed to him, starting around 3:10:00 in the video.)  Nadeau also didn’t ask anything about the issue of expanded eligibility, probably because no one’s going to think about doing anything that takes more money unless there’s plenty of public advocacy.

Which leads me to another point.  There was no representation yesterday among the witnesses by younger self-advocates, by anyone (except for one person with early-onset Alzheimer’s) having trouble with eligibility for services or quality of services, or by any family members other than myself.  I’ve heard enough from many of you to know that you aren’t uniformly satisfied, and Sandy and Jimi talked about a lot of situations over the past year that required their intervention.  If you want anything to change, though, you can’t hide behind those groups (or behind me!).  You need to speak up.  I know that it’s hard to make it to hearings in person, but the committee on human services will be accepting written testimony through March 7, so if you have anything to say, by all means say it.  You can send your input to humanservices@dccouncil.us.  And if some of what you want to say is too private, you can offer (as I have) to meet more confidentially with committee staff.  Otherwise, I guess it’s all smooth sailing…???
Image result for sailboat




Wednesday, February 20, 2019

Is DDS Performance Measuring Up?



Image result for dc.gov


On Thursday, February 21, starting at 10:00 a.m., the D.C. council’s Committee on Human Services, chaired by Brianne Nadeau, will hold its hearing on DDS performance over the 2018 fiscal year, in preparation for the FY 2019 budget season.  If you can’t attend in person, you can follow along online by clicking this link http://dccouncil.us/room-500/ or try https://entertainment.dc.gov/page/dcc-services-live to stream it (thanks to Emily Price for this information!).

DDS has answered a number of preliminary questions submitted by the committee and those are included here:  http://dccouncil.us/wp-content/uploads/2019/02/dds19.pdf.

There will be plenty of attention given to the pending housing policies as well – latest news is that DDS will hold a special session sometime in March.  More to come -

Friday, January 18, 2019

Time to Do the Right Thing on Housing Choice





In my December 28 blog post (“Housing Changes That Could Change Your Life, Part Two”), I wrote about the fact that DDS increasingly is moving people it supports out of the city to keep their rents below the rent cap – resulting in people being uprooted from their communities, and from the city itself – even as they continue receiving D.C. supports and services.  Solutions are definitely needed, but the current DDS “Housing Choices” policy and procedures, even as revised on January 12 (https://tinyurl.com/ya6ezqnw and https://tinyurl.com/yabucokm), really don’t do much to create new choices for people receiving residential supports from DDS.  What they do is shift the risks onto the people it supports and their supporters.  So there remain an awful lot of outstanding questions, and many of these were raised at the January 7 meeting I attended along with other advocates, family members, and representatives of provider agencies. At that meeting, Liz Seaton (liz.seaton@dc.gov) tried very hard to keep people focused on line-by-line feedback on the procedures, but there were many, more fundamental, issues that people wanted to raise, and for the most part Liz had to answer that she would check and get back to us (the same thing I’ve heard in each of the sessions so far on these policies).  I did get one answer when Erin Leveton (erin.leveton@dc.gov) briefly called in and stated unequivocally that if a person’s credit record prevents them from assuming the lease and a family member or other individual is leaseholder, with the person supported as the resident, they still would qualify for residential services such as supported living.  It was good to get that clarification, but it needs to be explicit in the policy and still is not.

That was just about the only concrete answer provided, so that leaves a lot of room for clarification, and even after a further session at Project Action! on January 12, things still are murky.  Several key disability organizations have issued this joint statement - https://tinyurl.com/ybpvz3sd (full disclosure:  I serve on the board of the Quality Trust and have recently become chair of the D.C. Developmental Disabilities Council).  I was glad to see that this statement picked up on some of the concerns I raised in  my earlier blog post, such as the need for a troubleshooting team for the inevitable complexities that are going to arise and the need for concrete DDS commitment to on-time payment (since its failure will affect others’ credit ratings and perhaps also prompt evictions). The DDC/QT/ULS statement contains many other questions but is not intended to be comprehensive and specifically calls for more in-depth, two-way dialogue (not just input sessions) with stakeholders.  This is crucial, because so far, DDS has demonstrated that it doesn’t know what it doesn’t know, and plans simply to learn by doing. 

In addition to the issues I’ve raised that were picked up in the joint statement, there are other concerns I have, such as the need for DDS to post on its website the foreseeable risks to which it’s exposing people, providers and family.  Beyond that, other questions I believe DDS needs to be aware of and address before publishing the policy and procedures include:

-          Eviction dangers.  The joint statement talks about the significant dangers of eviction to which the new policy would expose people, and there are fundamental questions that DDS needs to answer here.  In addition to those questions, I continue to maintain that DDS should plan to have a clearly defined and available respite space for people who are evicted, for whatever reason, to ensure they do not wind up on the street in the meantime.

-          Appeal process.  An issue that I didn’t mention in my last blog post, but which came through clearly from other advocates in the January 7 meeting, is the need for the DDA complaint system to be in place before this policy, or the accompanying Contribution to Costs policy, is finalized.  Unlike the current court-based appeal process, a new complaint process is intended to offer a far more accessible and evenhanded way for people to appeal DDS determinations.

-          The mechanics of payment.  The normal practice with rent top-ups has been for the provider to collect DDS’s funds up to the cap and the balance from the family, making a single payment to the landlord.  Since providers would not be the leaseholders under the proposed arrangements but still would be handling the DDS payment, presumably landlords would be in a position of receiving payments from two sources each month.  It isn’t clear that landlords will find this acceptable.

-          Lengthy DDS approval procedures.  It’s one thing for a landlord to hold an apartment during DDS examination and approval of a prospective apartment if the DC government is the effective renter (by way of the provider agency), but it still isn’t clear that a landlord will hold an apartment for a person or family if the DDS approval process takes a while, so DDS should commit to getting this done within a specified period.

Other issues I’ve raised, such as the fact that insurance companies won’t cover the provider's staff under renters’ insurance, will no doubt be considered by DDS to be the family’s and the provider’s problem, but this is an example of the type of complexity on which troubleshooting staff should be prepared to advise people after the policy takes effect.

I’m certain that some form of this policy and procedures will eventually be finalized, and there is indeed a need for more standardized and transparent approaches to people’s housing choices.  Given that DC citizens with disabilities are increasingly being priced out of the DC housing market, though, it would be timely and desirable for DDS to coordinate with other parts of the DC government to ensure that more housing options are available, whether people are receiving residential services from DDS or not.  Above all, I’d like to see DDS taking more leadership in sensitizing the entire DC government to the needs of this segment of the city’s population at a time when Mayor Bowser is focusing so specifically on affordable and accessible housing options.

When you contact DDS, please reference the joint statement and the need for further dialogue on these important changes.  And I’m happy to include DDS comments on and responses to issues raised above and in the joint statement in a future blog post. I’ve just learned that DDS has promised a further public forum to elicit feedback, but another session in which DDS asks for input, gets many of the same questions and answers few of them, won’t really do the job.  Real transparency, and dialogue, are needed.

Thursday, January 17, 2019

Revisiting the DDS Contribution to Costs Policy and Procedures




I made a mistake when I wrote that there was no room for further debate or discussion with respect to the current version of the DDS policy and procedures on contribution to costs of care (“Housing Changes That Could Change Your Life, Part One,” December 28, 2018).  On further review, it’s clear that not everything in the policy and procedures was already fully spelled out in the law and regulations.  Even though the Contribution to Costs regulations were already published in the DC register (https://tinyurl.com/ycnsa43h) and new versions of the policy and procedures were distributed last weekend at the Project Action! Meeting (https://tinyurl.com/y7s39o7j and https://tinyurl.com/y9ewmepd - safe links to my Google Drive account), there are lingering issues that DDS still needs to acknowledge, discuss further with public advocacy groups, and address before finalizing the policy and procedures.  These issues (with references to key sections of the policy, but necessitating changes to other parts of the policy and procedures) include:

-             The need to air more fully and consider the implications of 3.B. of the policy (made even more explicit in the January 12 revision) which makes the residential provider (along with guardian if applicable) fully responsible for ensuring a person has applied for applicable public benefits, with no apparent DDS responsibility.

-             In 3.C. of the policy, the need to include, in addition to the statement that “DDS will not require a person to contribute more than the actual cost of their DDA residential supports,” a more specific statement that the person will not be expected to contribute to the costs of their staffing or other Medicaid-reimbursed supports.

-             The need to state clearly in 3.C. and 4.O. of the policy that, if a person is receiving residential supports and already contributing to his or her own cost of occupancy, e.g. by paying utility or cable bills, that that amount should be deducted from the total amount the person is expected to pay to the residential provider.

-             The need to recognize, in 3.D. of the policy, that if a person’s SSI is decreased due to third-party housing assistance, the amount of that assistance will not be available to the person in order to compensate the difference up to the maximum SSI amount, and that they should therefore still continue to receive their full $100 allowance.

-             The need to acknowledge, with respect to section 3.G. of the policy, that merely documenting the contribution to costs of residential supports in the Individual Financial Plan is inadequate.  People have legal rights to formal written notice individualized to the person's specific financial circumstances and stating what the person is to be charged, how that was calculated, what the relevant laws and policies are, what the consequences are of not paying, and how to appeal the determination (see below).

-             The need to ensure, with respect to 4.P. and 4.Q. of the policy, that people will not be unduly punished by the threat of discharge from residential services because a representative payee or guardian has failed to ensure payment of their contribution to the cost of residential supports.  DDS and providers should instead turn to other less punitive remedies, such as seeking (after discussion and via a transparent and fair due-process approach) to have the delinquent representative payee or guardian replaced.

-             With respect to section 4.J. of the policy, DDS should wait until the DDA Complaint System is operational before putting this policy and procedures into effect.  Otherwise there is no formal recourse in the earliest months of implementation, when many of the most significant unforeseen consequences will become evident.

-             Finally, what is addressed nowhere is the need for troubleshooting staff which I referenced in my December 28 blog post on this issue.  Having such staff will avoid the need for regular recourse to the Complaint System once it is in place, by ensuring that service coordinators, who will not be in a position to address or adjudicate many of the issues in the policy and procedures, will have easy recourse to in-house expertise.

I hope that DDS will slow the train down and take the time to fully consider the above, as well as other issues raised in the Project Action! meeting on January 12, before putting the Contribution to Costs policy and procedure into final form.

Friday, December 28, 2018

Housing Changes That Could Change Your Life: Part Two



Part two of this blog post will address the HCBS Housing Choices” draft policy and procedures, which, unlike the Contribution to Costs policy, are wide open for comment and revision. (Refer to https://drive.google.com/drive/folders/1h6PCyTDF7rPUxgOl5ntF2f0Ws71CvLu8?usp=sharing for the set of proposed housing policies and procedures.)  The Housing Choices policy and procedures lay out what is supposed to happen in the future if people receiving residential supports want to live with people other than DDS-designated roommates or in a rental unit that exceeds the rent cap established by DDS.  To an extent the choices offered in this policy already exist, but entail individual negotiation with DDS. This policy would standardize the options available to people and – most importantly - shift the risks of these arrangements onto the people receiving supports.  As the procedures (2.C.3.) state, “the person…accepts the associated risks, including financial risks and facing eviction for non-payment of rent.”

This is a real departure from past practice, and it’s why a great deal of caution and deep thought are needed.  Since there is no real time urgency for implementing this policy, DDS should take the time needed to responsibly think through the implications along with stakeholders.  The next opportunity for discussion will be Monday, January 7 at 2:00  in the Joy Evans conference room at DDS headquarters and at Project Action’s January meeting.

Let’s look first at who this applies to - only those receiving residential supports (supported living or residential habilitation) services under the DDS-administered I/DD Medicaid waiver.  A lot of people in the Supporting Families meeting on the 13th were confused about this. To be clear, the policy applies only to those receiving intensive supports in a home owned or leased by a residential-services agency or the person being supported.  (Some of the proposed changes are make things more confusing, though, as discussed below.)

Now let’s look at why this is happening:  D.C. rents are rising astronomically, and people are getting priced out of the local housing market.  Some folks who have been living for a long while in a particular building have been forced to move because their rents have risen above the DDS rent limit.  So more and more people are having to move where rents are less expensive, mostly out of the city and into Prince George’s County.  (I discussed this in my post, “D.C. Housing News You Can Use,“ on August 9.)  People just starting to get supports are also being moved out of the city.   So those who can do so are looking at other options if they want to stay in familiar neighborhoods and not lose their ties to D.C. and their community (including voting in the District, which our citizens with disabilities have been encouraged to do).

Finally, let’s look at some of the details, and where – based often on direct personal experience - I see bumps along the road if DDS moves to implement the Housing Choices policy and procedures without further thought and discussion:

-          In the policy (3.D. under “Standards”), DDS assumes that a person “has the option to choose to become either a sole lessee or a lessee with one or more consenting third party co-signers.”  Unfortunately, this option does not necessarily exist.  If a person has no credit record – which is the case for many people with disabilities who have not held paid work - then some (maybe most) landlords will not allow the person to be a lessee – not even a co-lessee.  They will only allow someone else – usually parents or other family members - to be the lessee, with the person being listed on the lease as the resident in exactly the same way they are when a provider agency does the leasing.  DDS will quickly need to decide whether an apartment rented by a parent for a person getting supports then becomes a “natural home” and whether, if it does, the person can still qualify for the “housing choices” being offered.  The existing standard for who can own or rent a supported-living residence – section 1934.7 in http://dcrules.elaws.us/dcmr/29-1934 - suggests an inconsistency here that needs to be addressed.

-          The Housing Choices policy (Standards, 3.E.) further calls for DDS to pay the residential provider an amount up to its rent limit.  Currently, when family or others pay above the rent cap, the provider combines both payments and the landlord receives a single payment. Under the proposed approach, it appears there would be two payments to the landlord, one from the provider (the DDS payment), and another from the person or their family for the balance. If this is the intent, then does DDS know that all landlords would accept such an arrangement, and how would the lessee be sure the accompanying DDS payment would occur on time (see below in the discussion of risks)?

-          The policy assumes that all risks can be shifted onto the lessee, but in at least one regard this is not the case.  Landlords often require renter’s insurance, but - based on my direct personal experience - an insurance company will not cover liability for staff who work in the apartment under such a renter’s policy – they will only cover the lessee and named resident. This means that the provider agency still will bear the risks for the actions of its own staff and will need to carry applicable liability insurance.

The above considerations apply to landlords’ and insurance companies’ requirements, but as it moves to shift the risks of housing arrangements onto the people it supports, DDS must mitigate risks over which it has control, for example:

-          DDS is not always timely in its payments to provider agencies, and some providers are also late in their own payments. If the person or their family is on the lease, and the DDS/provider portion of the rent is paid late, that will affect the credit rating of the person or family member on the lease, and if paid very late or not paid at all, could cause a person to be evicted.  There need to be ironclad assurances by DDS and provider agencies that payments will be made to landlords by the 5th of the month so that delays on their part will not negatively affect others’ credit ratings.

-          The new procedures (“The Process for Making Housing Choice,” 3.E.6.) lay out an approval process by DDS for any proposed living situation before the lease can be signed.  Landlords may be willing to hold an apartment while this process takes place if a DDS provider agency is the one who’s renting, but it isn’t clear that a landlord will hold an apartment for a person or family if the DDS approval process takes a while, so DDS should commit to getting this done within a specified period.

-          Section 3.H. (under “Standards”) of the policy addresses what happens in case a person opting for a nontraditional housing choice is evicted, and goes on to describe a process for either placing the person into an existing vacancy in provider housing or, after further discussion, allowing them to choose another nontraditional living situation.  An eviction can happen quickly, and the process described takes time.  DDS should plan to have a clearly defined respite space for people in these circumstances, to ensure they do not wind up on the street in the meantime.

I know I haven’t thought of everything.  Other unforeseen issues will arise, along with financial consequences such as those I discussed on part one of this blog post.  This calls for DDS to have a core of dedicated troubleshooting staff who can step in quickly to assist when the requirements of landlords and insurance companies don’t align with DDS expectations and are beyond the capabilities of service coordinators to resolve.  Housing decisions must often take place quickly, and lengthy delays will only ensure that desirable apartments go to someone else while details are worked out. 

The procedures also state (section 1.) that “DDS will post information on its website about DDA residential supports and rental limitation rates.”  DDS also needs to post a clear discussion of likely risks and what it intends to do to mitigate risks over which it has control, as discussed above.  Many issues can be foreseen, and I’ve called attention above to a number of them.  DDS needs to try to sort these out before moving forward so that all the learning doesn’t take place at the expense of people and their families.

Housing Changes That Could Change Your Life: Part One



This is part one of my last blog post of 2018.  Read both parts one and two quickly, because decisions are being made in the early days of 2019 by the D.C, Department on Disability Services (DDS) about new policies and procedures affecting anyone who gets residential supports from DDS. 

At the December 13 Supporting Families Community of Practice meeting, the revised policies and draft procedures to accompany them (https://drive.google.com/drive/folders/1h6PCyTDF7rPUxgOl5ntF2f0Ws71CvLu8?usp=sharing),
were distributed and discussed in small groups.  These are complicated documents, and I’m happy to learn that, contrary to its original plans, DDS is extending the period for feedback at least to mid-January.  Both will be reviewed again at HCBS waiver meetings in early January, and at the Project Action! meeting in January.

There’s little that can be done with respect to the Contribution to Costs policy and procedures, since the D.C. council already passed its law and since the regulations have been finalized.  This set of documents will, however, be discussed on Wednesday, January 2 at 2:00 in the Joy Evans conference room at DDS headquarters.  As I’ve said before, I don’t believe there was sufficient effort to make stakeholders aware when the law was submitted and the regulations were out for comment last year.  However, at this point any fundamental changes are going to require further action by the D.C. council. In the near term, as DDS moves to implement this policy, I see two significant considerations: 

1)      Implementing the contribution to costs policy and procedures is going to involve some very large changes in practice, both at intake and in annual ISP (Individual Support Plan) meetings.  Many service coordinators are struggling to accomplish their core functions and will need solid backup to deal with these new complexities, so DDS needs to make sure it develops a team of dedicated staff who will fully understand all the financial implications and calculations.  We were told on December 13 that people will receive a detailed accounting of the locally-funded costs of their care, and this will be a complex undertaking.  In the longer term, there are surely going to be other unforeseen consequences from the contribution to costs policy for this unit to consider.  (I also would like to know what DDS has in store with respect to the language in the policy under 2.A., “or their estates,” which is not addressed in the procedures.)

2)      Some foreseeable financial implications will result from changes that would come under the accompanying “HCBS Housing Choices” policy and procedures, which I’ll discuss in part two of this blog post.  People’s SSI payments don’t only decline as a result of work income.  It’s also the case that if family or others help people with their housing costs over and above what DDS pays, their SSI payments will go down in that case as well.  People still will get their $100 allowance, but DDS will receive less.


An urgent change that I hope the council will make immediately is to ensure that cost-of-living increases will apply to the allowances received by the people DDS supports.  A fixed $100 allowance year in year out will have the effect of progressively impoverishing D.C. citizens with disabilities as the cost of living increases, while DDS gets the benefit of the annual increases in SSI or other benefits (making the name "Independence Square" in the accompanying photo of DDS headquarters especially ironic.) This is a flawed arrangement, not fair or justifiable, and I look forward to a change by the council very soon to remedy this, preferably by calculating contributions to costs on a percentage, rather than fixed-amount, basis.  

Part two of this blog will deal with the HCBS Housing Choices policy and procedures – please read on if you or those you support receive residential supports under the DC waiver.

Wednesday, December 12, 2018

DDS Housing Policies on the Agenda December 13!


As I mentioned in my last post, tomorrow will be the Supporting Families Community of Practice meeting, where the DDS policies on residential supports and contribution to costs of care from people receiving them will be discussed and input will be invited.  Here is the agenda:

https://drive.google.com/open?id=1wWgY4NVQOclqTFYOx60sFfNZkArTbz2E

Attend or call in if you possibly can - DDS needs to hear from you!