[rev March 2022]
Here are some common terms and organizations you should know, organized alphabetically, in order to understand the disability world in D.C. Let me know if you think there are others I should add, or if you see any errors here.
BSP – Behavior Support Plan. Anyone receiving DDA supports who takes regular medications or requires any other type of behavior management must have one of these, renewed annually, because medications and behavior management are viewed as rights restrictions. The individual being supported or his/her designated representative (e.g. power of attorney or court-appointed guardian) must provide informed consent by signing the BSP, which also goes through a two-tier review process, one (Human Rights Committee, or HRC) convened by the BSP service provider, and the second (Restrictive Controls Review Committee, or RCRC) convened by DDA.
CMS – Centers for Medicare and Medicaid Services, U.S. Department of Health and Human Services. This is the arm of the federal government that oversees and provides approval/disapproval for anything relating to Medicaid waiver services – including the I/DD waiver and the EPD waiver in D.C. (see below). https://www.cms.gov
DDC - The D.C. Developmental Disabilities Council (https://ddc.dc.gov/) is responsible for “identifying the most pressing needs of people with developmental disabilities ...[and] advancing public policy and systems change that help [them] gain more control over their lives.” As one of the 56 federally mandated, federally funded state councils on developmental disabilities, it promotes self-determination, integration and inclusion for D.C. adults with developmental disabilities. In D.C., its members are appointed by the mayor. The current executive director is Alison Whyte (firstname.lastname@example.org) and, as of January 2022, Anjie Shelby is the DDC chair. Each state's DD council is hosted by a Designated State Agency, and in D.C. that agency is the Office of Disability Rights (https://odr.dc.gov/). Find more information about councils on developmental disabilities at https://nacdd.org and https://acl.gov/programs/aging-and-disability-networks/state-councils-developmental-disabilities.
DC Coalition - The DC Coalition of Disability Service Providers represents the human care
agencies responsible for support and services to D.C. citizens under DDS
oversight. The executive director is Ian
DDinWDC - Developmental Disability in Washington, D.C. You're reading it - my blog about issues affecting people with developmental and other disabilities in the D.C. area, at https://www.DDinWDC.com/
DDERAA – Developmental Disability Eligibility Reform Amendment Act. Introduced into the DC council in May 2021 following substantial effort from the DC disability community, this bill passed the council with unanimous support on March 1, 2022. It is expected to take effect on October 1, 2022. https://lims.dccouncil.us/Legislation/B24-0268
DDRA – Developmental Disabilities Reform Act (not the same as the DSRAA, below). Introduced in the council in 2009, this bill, with the support of most organizations concerned with disability issues, proposed full-scale revision in the legislation addressing support for those with developmental disabilities. The bill died in committee in December 2010. DDS has found ways to implement some aspects of the bill not requiring specific legislation. Eligibility reform, finally passed in the DDERAA, was the major pending issue remaining. http://dc-dleg.blogspot.com.
DDS – The Department on Disability Services. DDS is the D.C. entity with primary responsibility for serving persons with intellectual and developmental disabilities. In D.C. the Developmental Disabilities Administration (DDA) and the Rehabilitation Services Administration (RSA) both come under DDS. As of April 2016, Andy Reese has been DDS director since 2016. https://dds.dc.gov
DDS/DDA – The Developmental Disabilities Administration, one of the two operational arms of DDS (the other is RSA, below). DDA’s primary function is to administer the I/DD waiver, described below, which is one of two “Medicaid waivers” for citizens with disabilities in the District. Winslow Woodland is the deputy director overseeing DDA (email@example.com).
DDS/DCRSA - Rehabilitation Services Administration, one of the two operational arms of DDS (the other is DDA, above). DCRSA provides “vocational rehabilitation” services in D.C., and is intended to help people with disabilities (in this case, either developmental or physical) to identify the type of work they’d like to do and in some cases assist them to get the training or education they need. Darryl Evans is deputy director for RSA.
DHCF - The D.C. Department of Health Care Finance. DHCF oversees healthcare services for residents of the District of Columbia, and is responsible for all Medicaid funding - including the waivers administered by DDS and the EPD waiver administered by the D.C. Office on Aging. It is headed by Wayne Turnage (firstname.lastname@example.org), who is also deputy mayor for health and human services under Mayor Bowser.
DRDC - Disability Rights D.C., D.C.'s federally-mandated Protection and Advocacy program located in the nonprofit organization University Legal Services (ULS). Along with the DDC and the UCEDD, DRDC is the second leg of the D.C."triad"of federally manated entities with responsibility for developmental disabilities. www.uls-dc.org.
DSP – Direct Support Professional. As the name indicates, these are staff who work directly with the individuals receiving support from one of the agencies funded under the waiver. The Direct Support Professionals Payment Rate Act of 2018 (https://lims.dccouncil.us/Legislation/B22-1035) was passed by the DC council in February 2020, but as of 2022 it has not been fully funded by the DC government.
DSRAA - Disability Services Reform Amendment Act of 2018. Previously known as the Citizens with Intellectual Disabilities Civil Rights Restoration Act of 2017, this bill, passed in 2018, rolled back civil commitment, established supported decision making as an alternative to guardianship in the District, and called on DDS to establish a system for resolving complaints.
EPD – Elderly and physical disabilities waiver, administered by D.C.’s Department of Aging and Community Living (DACL). It is sometimes also confusingly called the “elderly and persons with disabilities” waiver. https://dacl.dc.gov/sites/default/files/dc/sites/dacl/page_content/attachments/EPD%20Waiver%20Application%20Guide%202021_0.pdf
FSC - Family Support Council. An advisory body established by DDS to provide
advice on how to improve person- and family-centered supports and inclusion
through D.C. programs.
FY - Fiscal year, also known as the budget year. D.C.'s fiscal year runs from October 1 through September 30.
Georgetown UCEDD - University Center for Excellence in Developmental Disabilities. UCEDDs are federally mandated (see https://www.aucd.org), and the university center for D.C. is housed at Georgetown. The Georgetown UCEDD is the final leg of the "triad," along with the DD Council and DRDC. Tawara Goode is director of the Georgetown UCEDD. http://ucedd.georgetown.edu.
HCBS - Home and Community-based Waiver. Under Medicaid regulations, this is the preferred alternative to institutional care for persons with disabilities, and is the trend in disability supports nationwide. https://www.medicaid.gov/medicaid/home-community-based-services/home-community-based-services-authorities/home-community-based-services-1915c/index.html
IDEA - Individuals with Disabilities Education Act, a federal law originally passed in 1975 that ensures students with a disability are provided with Free Appropriate Public Education (FAPE) tailored to their individual needs. https://sites.ed.gov/idea/
I/DD waiver = Intellectual and developmental disabilities waiver, administered by DDA. Despite the name, this waiver has served only those who were tested with an IQ of below 70 (with allowance in some cases for a slight margin of error) before the age of 18. Services under the I/DD waiver have not been provided to those with other developmental disabilities such as autism unless they are accompanied by an intellectual disability as defined above. This will be changing under the DDERAA (see above). http://dds.dc.gov/service/how-apply-services
IFS waiver - Individual and Family Supports waiver. Instituted in FY 2021, the IFS waiver is intended for people whose needs are more limited than those under the I/DD waiver. Supports are capped at $75,000 per person. https://dds.dc.gov/sites/default/files/dc/sites/dds/release_content/attachments/IFS%20Waiver%20Fact%20Sheet--Final%20102820_0.pdf
IPE – Individualized Plan for Employment. Everyone approved for services from DCRSA has to have one of these. Unlike the ISP for DDA services, these are updated on an ad hoc basis, as and when there is a change in the type of employment-related services being requested. http://dds.dc.gov/service/creating-individual-plan-employment
ISP - Individual Support Plan. Everyone receiving DDA services has to have one of these, reviewed and renewed annually. https://dds.dc.gov/publication/annual-individual-support-plan-procedure
NASDDDS - National Association of State Directors of Developmental Disabilities Services. The association's goal is to promote and assist state agencies to furnish high-quality supports to people with intellectual and developmental disabilities and to build person-centered systems of services and supports for people with intellectual and developmental disabilities and their families. https://www.nasddds.org.
ODR - D.C. Office of Disability Rights. ODR's mission is "to ensure that
the programs, services, benefits, activities and facilities operated or funded
by the District of Columbia are fully accessible to, and useable by people with
disabilities." ODR also houses and staffs the federally-funded D.C.
Developmental Disabilities Council. Mat McCollough is the current
director of ODR. https://odr.dc.gov/
OSERS - Office of Special Education and Rehabilitative Services, U.S. Department of Education. OSERS oversees vocational rehabilitation services nationwide. http://www2.ed.gov/about/offices/list/osers/rsa/index.html
Project ACTION! - Project ACTION! is a grouping of self-advocates based in D.C. (but including representatives from Maryland and Virginia as well). ACTION! stands for Advocacy, Change, Training, Information, Organizing and Networking. This vibrant organization, which weighs in actively on issues of concern to the disability community, meets monthly on Saturdays at the Kennedy Institute, 801 Buchanan St. NE, Washington, D.C. For more information contact Phyllis Holton at (202) 448-1458 or email@example.com.
QT - Quality Trust for Individuals with Disabilities - also often just called "Quality Trust." QT is a nonprofit organization incorporated in 2001 under the Evans lawsuit to advocate and monitor services for people with developmental disabilities in D.C. Its role has broadened to include, in particular, national leadership on supported decision making. As of March 2022, QT has a new CEO, Shawn Ullman. http://www.dcqualitytrust.org
SILC - State Independent Living Council. These exist in every U.S. jurisdiction, to promote independent living for people with disabilities. D.C. SILC members are appointed by the mayor and include advocates, others with disabilities, and other stakeholders involved in independent living services. http://dds.dc.gov/page/statewide-independent-living-council.
SRC - State Rehabilitation Council. The SRC advises RSA on its role in providing vocational services and expanding employment options for D.C. residents with disabilities and tracks RSA's performance. SRC members are appointed by the mayor and include a variety of RSA stakeholders. http://dds.dc.gov/page/dc-state-rehabilitation-council
SDM - Supported Decision Making. SDM offers a way to support people with
disabilities in making decisions without supplanting them. With the DSRAA, D.C.
became one of only a handful of states (because hey, that's really what we
are!) to offer SDM agreements as an alternative to guardianship.