Getting Rolling on Advocacy
This post will be brief, and is mainly to
alert folks that the DDS-sponsored Supporting Families Community of Practice is
beginning to be a more active and promising forum (erin.leveton@dc.gov for information). I attended much of the session on September
17, at which the main focus was on getting parents to organize on disability
issues and to advocate with local authorities on shared concerns. Laura Nuss, Director of DDS (see my August 11
post) was there, and she spoke about possibilities for advocacy around future
legislation with respect to support for people with developmental disabilities,
such as alternatives to the current court-commitment process for most D.C. Medicaid
waiver recipients and funding an expansion of coverage beyond those with
intellectual disabilities. There was
also a very good presentation on advocating for system change in D.C. by Diane
Lewis of Alta Consulting. Based on the
turnout and the substantive focus of this session, it’s clear that things are
starting to bubble and there are people ready to get more active, but efforts
need to be focused in order to make a difference. With the number of people in D.C. who are not
being served currently, for reasons having to do with the history of service
provision in D.C. (more about this in upcoming posts), I believe this deserves
a major push from all of us, with our council members as well as the new mayor,
so that a broader array of people with developmental disabilities and their families
get the support they need.
I’m developing questions to send to the
three mayoral candidates with respect to their perspectives on issues of
developmental disability in D.C. If you
have thoughts you believe should be reflected in the questions I submit, feel
free to weigh in – click below on “No comments,” and make it one, two, three
and more comments. I’m proceeding, but
will welcome your ideas.
And while you’re at it, make sure you go to
the bottom of the blog and select “Follow by email,” so you can see future
posts with less effort.
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